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Norwood-based author shares her journey of living with lupus disease

NORWOOD — Batista was diagnosed with systemic lupus erythematosus (SLE) and rheumatoid arthritis, both chronic, debilitating autoimmune diseases, in 2010.

Everyone has a story to tell, and there is always a willing listener on hand.

Norwood-based author Marcelle Batista has written an autobiography about living with lupus to raise awareness of this cruel, and mysterious disease.

Batista was diagnosed with systemic lupus erythematosus (SLE) and rheumatoid arthritis, both chronic, debilitating autoimmune diseases, in 2010.

As the disease is misunderstood by many and not enough information is available about it, Batista wrote her book to share her lupus journey, song, and dance with lupus sufferers, or as she prefers to call them lupus warriors.

In her autobiography titled Living Life Lupair, she describes her tragedies, adventures, and dramas to provide valuable insights.

Author Marcelle Batista shows her autobiography titled Living Life Lupair. Photo: Supplied

“I was very ill at the time, emotionally and physically, and did not know how I was going to deal with lupus in my life. It took me several years to deal with this stark white reality and to come to terms with being chronically ill,” Batista said.

To understand, and respect, that life changes, she had to impose boundaries and honour the changes taking place in herself and her life.

“I worked hard and tirelessly on transforming myself and my life to suit the lupus spectrum and to let it not define me by being a lupus sufferer, but to have lupus live with me and define myself, as me with lupus.”

Batista has travelled a gruelling journey but lives to tell how she has achieved, transformed, and reinvented herself and is living a fabulous life with lupus, and how it is possible to be that person, and this person with simultaneous joy, challenges, strife, and utter happiness.

“My autobiography defines me, evidence that I actively participate in my life’s events. Writing has allowed me to present my story and interpretation in a manner I can share with others. I have also been able to share my triumphs, disappointments, joys, and trials.

“I used my voice to speak for myself, translating my journey, and speaking on behalf of many who struggle with this journey. This honours us as warriors who fight this every day and our loved ones who fight with us and on our behalf,” she concluded.

ALSO READ: 

‘Rocking purple for Lupus’ raises support for National Lupus Day

https://www.citizen.co.za/rosebank-killarney-gazette/157587/arthritis-foundation-to-host-lupus-awareness-lecture/

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