Luxaro NPC is raising funds to support advanced vision restoration therapy for Boksburg resident Carel Roberts (31), who is living with Stargardt’s disease.

This is a rare, inherited retinal condition that progressively damages the macula, the central part of the retina responsible for sharp, detailed vision.

The NPC is dedicated to providing structured and practical support to individuals facing life-altering medical conditions and disabilities.

Recently, Carel was identified as a candidate for Fedorov Restoration Therapy in Germany, an innovative treatment aimed at improving visual function in individuals with optic nerve and retinal disorders.

While the treatment is not a cure, it has shown promising outcomes in helping patients retain or improve functional vision.

The fundraising target of R350 000 will cover specialised treatment abroad, medical assessments, travel, and related logistical costs required for the intervention.

To support this initiative, LUXARO will be hosting a charity golf day on April 14 at Krugersdorp Golf Club.

They are seeking support from businesses and members of the community through various forms of sponsorship for the event.

This includes sponsorship of prizes, golfer goody bags, event support, and general sponsorship contributions to assist in making the initiative a success.

Visit the Luxaro NPC Facebook page for details of how to support/register for the golf day.

ALSO READ: RARE DISEASE DAY: Witfield woman turns pain into purpose

What is Stargardt’s disease?

The disease causes the gradual degeneration of light-sensitive cells in the retina, leading to the development of blind spots in central vision, blurred or distorted sight, difficulty recognising faces, and an increasing inability to read or see fine detail.

Because the condition affects central vision, everyday activities such as reading, driving, identifying people, using digital screens, and performing routine tasks become progressively more challenging.

The condition often begins in childhood or adolescence and typically worsens over time. While peripheral vision often remains intact, the loss of central vision can significantly affect independence, employment opportunities, and overall quality of life. At present, there is no widely available cure, and treatment options remain limited.

The focus of this initiative is therefore early intervention aimed at preserving remaining vision, slowing further deterioration where possible, and protecting long-term independence.

Carel’s story reflects the essence of disability empowerment

Despite significant visual impairment, Carel has consistently demonstrated resilience and determination in pursuing his goals.

While living with progressive vision loss, he completed a BA in Law, an LLB, and a Master’s degree in Labour Law, ultimately building a professional career and continuing to contribute meaningfully to society as an attorney.

From a young age, Carel refused to allow his condition to define his potential.

During his school years, he actively participated in both sports and music.

He earned North Gauteng colours in both judo and athletics and progressed in judo to the level of 2nd Dan, reflecting years of discipline and dedication.

He also completed his Grade 5 UNISA Music Theory and Grade 6 practical through Trinity Musical School of London, further demonstrating his commitment to personal development despite the challenges associated with visual impairment.

ALSO READ: Watch: Klopper defends Ride for Sight title