International Down Syndrome Day celebrated

International Down Syndrome Day, an annual event, was celebrated on Friday, March 21.

The day is aimed at raising awareness of Down Syndrome, what it means to have Down Syndrome as well as the vital role the amazing victims play in our lives and community.

“Although this special day has been running for nine years, it is sad that very little is said or done to spread awareness of it in our country, as it falls on the same day as Human Rights Day, which is, itself, a very important day,” said Kathy Jooste, chief executive officer of Avril Elizabeth Home for the Mentally Handicapped.

“We find that many people still have misconceptions about what the syndrome is and, unfortunately, discrimination and fear of those who have Down Syndrome is still rife in our country.”

Avril Elizabeth Home has been caring for the intellectually challenged, many of whom have Down Syndrome, for the past 43 years; the home is, therefore, considered a leader in the field.

The international theme for this year’s awareness day was Health and Well being – Access and Equality for all.

Jooste went on to explain: “It is very important for people to understand that Down Syndrome is not an illness, it is a genetic condition.

“Many people with the syndrome are able to communicate well and can contribute economically to our society.

“Some in the home have the opportunity to work in our Adult Therapy Centre, where we have secured contracts from various companies for work that can be performed by our residents.

“The work includes tasks such as inserting paper into envelopes, putting together electric terminals or working on various kinds of packaging.

“It is an important part of therapy to do so and it creates a sense of normalcy and independence for residents.

“It also contributes to the health and well being of the resident.

“Down Syndrome has nothing to do with anyone’s socio-economic status, age or race.

“It is a result of a chromosomal disorder occurring at the time of conception.

“The exact cause is still unknown.

“What is known is that the disorder occurs as a result of an extra chromosome called Trisomy 21, which causes delays in intellectual and physical development.”

According to Down Syndrome South Africa, the incidence of the syndrome in South Africa is estimated to be one in every 500 births.

In addition, due to the advances in medicine, those who have Down Syndrome have a much higher life expectance than before.

“We have many aged residents with Down Syndrome and believe that this is due to the holistic care we provide, together with the warm, happy and loving environment,” added Jooste.

“We also believe that they are entitled to the same opportunities as anyone else and will continue to advocate for this.”

To find out more about Down Syndrome and/or The Avril Elizabeth Home, go to www.avril.org.za, or contact the home on 011 822-2233.