Teen stays hopeful
Teen told she would only have a few days to live.
Musnoena ‘Nonnie’ Hamsa has been diagnosed with the rare disease desmoid fibromatosis four years ago and was told she would have a few days to live.
The disease, according to her family, is caused by growths in the body which push organs out of place, it grows on muscles and tissue.
While it is not a form of cancer, it can be treated like cancer.
Nonnie said she was happy to hear the diagnosis wasn’t cancer but doesn’t know much about desmoid fibromatosis.
“When the doctors told us the disease can’t be cured I felt helpless and worthless.
“I still want to go to school, go to my banquet and play sports,” Nonnie said.
She attempted suicide thrice but says she is now focusing on being positive and no longer feels worthless.
The growth is in her neck, a difficult part to cut it out, according to her family.
It also spread to her chest and affected her spinal cord, Nonnie is now slightly skew on the one side of her body.
“I want her to be free from this disease, she is at home the whole day and doesn’t even go out of the house,” Chantelle Hamsa, her mother, said.
The disease is also financially crippling for the family resulting in them being behind with some payments.
Nonnie has to take morphine daily for the severe pain .. and a bag of other medications.
The family says they don’t know much about the disease and is appealing for assistance in any form.
“We need help in any way be it time, finance or education of the disease, we would appreciate anything,” Hamsa said.
She can be reached on 074 811 9616.
