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Family appeals for help to raise funds for son’s 24-hour palliative care

Eben Beukes developed Paediatric Inflammatory Multisystem Syndrome (PIMS), a rare but severe autoimmune reaction, which was followed by a secondary streptococcal infection and now requires funds to sustain his medical care.

A Centurion family is calling on the community’s support in raising funds for their 10-year-old son.

Eben Beukes requires 24-hour palliative care following a series of life-threatening illnesses.

Once a vibrant and kind-hearted child, Eben’s life dramatically changed in December after contracting Covid-19.

Hendrik and Eben Beukes. Photo: Supplied

His father, Hendrik, explained that what began as a viral infection quickly escalated into a critical health emergency.

Hendrik said, Eben developed Paediatric Inflammatory Multisystem Syndrome (PIMS), a rare but severe autoimmune reaction, which was followed by a secondary streptococcal infection.

“His body just couldn’t fight anymore. He suffered multiple strokes and severe cerebral damage. Practically overnight, our loving little boy was left completely dependent on round-the-clock care,” said Hendrik.

The family’s story is one of quiet strength and unimaginable loss, as two years ago, Hendrik lost his wife, Eben’s mother, to a stroke.

Now, as a single father, he is not only caring for his critically ill son but also supporting his teenage daughter, Ané, who is facing the trauma of her brother’s sudden health decline.

“As a father, I try to create a space filled with love, honesty, and prayer. My daughter and I talk openly about our feelings, fears, and hopes. I encourage her to express herself, and we lean on our faith and the close support of family and friends to carry us through,” he said.

Hendrik and Eben Beukes. Photo: Supplied

Hendrik said some days are harder than others, “but we take it one day at a time, leaning on God and each other”.

Despite these challenges, Hendrik continues to pour all his love and strength into giving Eben the comfort, dignity, and care he deserves. However, the emotional and financial toll is heavy.

Eben now relies on:

– 24-hour nursing and palliative support

– tube feeding and respiratory assistance

– ongoing seizure management

– specialised equipment, including oxygen and suction machines

– basic supplies such as diapers, hygiene products, and medication

“The costs are overwhelming,” Hendrik said.

The family is on a journey to raise R500 000 to cover Eben’s medical bill.

“Medical aid does not cover long-term palliative care at home. Every cent donated will go toward Eben’s nursing care, equipment, and daily medical needs. The R500 000 would definitely go a long way in covering Eben’s bill, but any amount donated is greatly appreciated and we are grateful for the support.”

He acknowledges that he can’t carry the burden alone.

“This is the hardest journey I have ever walked. Balancing work, caregiving, and emotional support is exhausting. I find strength in my children’s smiles, in prayer, and the kindness of others.”

He said the family is asking for any donation, prayer, or simply sharing Eben’s story to help ease their load and ensure Eben continues to receive the care he needs.

“Every donation will go directly towards Eben’s 24-hour nursing care, essential medical equipment, and daily consumables such as feeding supplies, diapers, and urgent medical needs,” he explained.

“While R500 000 would provide a solid foundation to sustain his care for the coming months, the high cost of private nursing and specialised supplies means ongoing support will likely be needed. With faith in God’s provision and the generosity of others, the family remains hopeful that we will be able to meet Eben’s continued need,” he said.

Hendrik also extended heartfelt gratitude to the doctors and nurses at the PICU at Unitas Hospital.

“Their dedication and compassion carried us through the darkest days. They weren’t just there for Eben, but for us as a family.”

He said the company he worked for the past 15 years has stood by him and supported him through this journey.

If you would like to reach out personally or help the family, you can contact Hendrik on 061 462 1420.

He further expressed his gratitude to the community for the continued support.

For more information and how you can donate, visit the following link:

https://www.backabuddy.co.za/campaign/help-us-give-eben-the-care-he-deserves

Do you have more information about the story?

Please send us an email to bennittb@rekord.co.za or phone us on 083 625 4114.

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