HOEDSPRUIT – For more than three years, the Herald has followed the courageous journey of Hoedspruit teenager Troy Matthysen and his family as they faced one of the most challenging medical battles imaginable.

Since first reporting on Troy’s diagnosis in 2023, readers have stood alongside the Matthysen family through multiple surgeries, radiation treatment, life-threatening complications and countless hospital visits as the teenager fought Juvenile Nasopharyngeal Angiofibroma (JNA), a rare but aggressive tumour affecting the nasal and sinus region.

The most difficult update yet

In recent weeks, the Herald reported that Troy was undergoing urgent specialist assessment after doctors suspected a cerebrospinal fluid (CSF) leak following further progression of the tumour. The condition carried serious risks, including meningitis and severe infection, while specialists worked to determine the best course of action.

Now, Troy’s dad, Jeff, has shared the family’s most difficult update yet.

“To everyone who has followed Troy’s journey, I’ve been trying to write this update for a long time, but every time I sit down, I just can’t bring myself to relive it. I know so many of you have been praying for Troy and asking how he’s doing, so I owe you an honest update. Unfortunately, Troy’s tumour/cancer has progressed. After everything he has already endured, surgery is no longer an option. His little body has been through so much that the risks are simply too great, and the doctors believe he would not survive another operation.”

Focus shifts to comfort and quality of life

Jeff writes that the family’s focus has now shifted to keeping Troy comfortable and giving him the best quality of life possible. He is receiving palliative care at home, surrounded by the people who love him most.

“The doctors have prepared us for the reality that Troy’s time with us is limited. They have told us we may only have months, possibly up to a year. We also know that because of his condition, a serious bleed could happen at any time, so Troy must stay calm, comfortable, and free from unnecessary stress. These words are almost impossible to write.”

Cherishing every moment

“Most days, Troy sleeps a lot now. When he’s awake, we’re trying to fill his days with love, cuddles, laughter, and precious memories. Every smile, every hug, every moment together has become more valuable than words can describe.”

The painful reality of life continuing

Jeff said one of the hardest parts is that life does not stop.

“The bills continue, and I still have to work every weekend just to make ends meet. Every hour I’m at work is time I wish I could be spending with my little boy. It’s one of the most painful realities our family is facing right now.”

A message of gratitude

Jeff concluded by thanking everyone who has stood with them from the beginning.

“Your prayers, messages, kindness, and support have carried us through some of our darkest days. We ask that you please continue praying for Troy: that he remains comfortable, free from pain, and surrounded by peace and love. Please also keep our family in your prayers as we treasure every moment we have left together,” said Jeff.

Read more about Troy’s journey:

• Plea for help to save Troy’s life
• Troy’s surgery is a success
• Troy’s health still at risk
• Troy out of danger
• Bleeding causes major setback in Troy’s health
• Hoedspruit teen Troy faces new health scare