After the Mogale City Business Committee non-profit company (NPC) helped secure life-changing surgery for 15-year-old Mahlatse Marema, the first phase to relieve his Neurofibromatosis was completed.

Neurofibromatosis is a genetic disorder that causes tumours to form on nerve tissue anywhere in the body, including the brain, spinal cord and nerves. These tumours are usually non-cancerous but can lead to complications such as hearing or vision loss, learning difficulties, bone deformities, and pain if they grow or press on vital structures.

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Mahlatse’s mother, Magdeline, explained that he has lived with Neurofibromatosis all his life. However, it had reached a stage where he needed surgery to save his speech, sight, and hearing.

“There is no cure for it, even if they cut the excess away. But surgery helps relieve the pressure that the tumours cause,” she said.

The NPC stepped in to assist, with chairperson Gideon Phiri explaining that the organisation is devoted to uplifting disadvantaged communities.

After engaging with the Netcare Foundation, the NPC secured a commitment to cover the full costs of Mahlatse’s diagnosis and surgery.

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Gideon confirmed that Mahlatse has completed the first phase of surgery, with the second phase scheduled for January.

Mahlatse has since been moved from the theatre to a general ward to begin his recovery. Gideon said he is now able to speak and hear, but will remain in the hospital for further assessments and monitoring.

The NPC will continue to support Mahlatse and his family by raising funds for accommodation, transport to and from the hospital, groceries, meals during visits, and other unforeseen expenses.

By supporting Mahlatse, Gideon added, the NPC also aims to raise awareness about Neurofibromatosis and the limited medical assistance available for the condition.