Organisation from Mogale steps up to support brave teen’s fight
After years of waiting, 15-year-old Mahlatse Marema from Wheatlands will finally undergo surgery for Neurofibromatosis, thanks to support from the Mogale City Business Committee NPC. Warning: The following images may disturb sensitive viewers.
The Mogale City Business Committee non-profit company (NPC) has stepped in to bring hope to 15-year-old Mahlatse Marema, who suffers from Neurofibromatosis, by offering him crucial financial and emotional support.
Chairperson Gideon Phiri explained that the registered NPC is dedicated to uplifting disadvantaged communities in the West Rand. Their focus is now on Mahlatse, who urgently needs surgery to remove tumours growing on his face.
Mahlatse’s mother, Magdeline, is a single parent and currently unemployed. With only a disability grant as income, she could not afford the operation. After engaging with the Netcare Foundation, the organisation secured a commitment to cover the full costs of Mahlatse’s diagnosis and surgery.
On September 15, Mahlatse attended his first medical examination. He is now preparing for his long-awaited surgery, scheduled for November 3.
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The NPC has also committed to supporting him before, during and after treatment. They are working with the Itereleng School for Special Needs, where Mahlatse is a learner, and the Gauteng West District of the Department of Basic Education to ensure his well-being is protected.
“We aim to raise funds for him to support Mahlatse and his family during the period. The funds will be strictly managed by the NPC in collaboration with the school and the education department,” Gideon explained.
He said the funds would go towards accommodation, transport to and from the hospital, household groceries, food during hospital visits, and any unforeseen expenses.
Besides helping Mahlatse, Gideon noted that the NPC also hopes to spread awareness about Neurofibromatosis and the lack of medical assistance available for the disorder.
Mahlatse was diagnosed with the rare disease at the age of three. His mother described it as a genetic disorder that causes tumours to grow in the nervous system. She added that the growth he currently has affects his speech, hearing and sight, while also damaging his nerves.
“There currently is no cure for the disorder, but the surgery will help Mahlatse gain some relief,” Magdeline said.
For more information about this initiative, contact Gideon on 078 504 8999 or 079 304 1817 or email gp@mogalecitybc.co.za. Alternatively, visit www.mogalecitybc.co.za.
