Caring for a loved one with dementia: When home is no longer enough

Knowing when to seek professional care for a loved one with dementia is one of the toughest decisions a family can make.

September is World Alzheimer’s Month, a time to raise awareness about dementia and the care needs of those living with the condition. Every family faces difficult decisions when a loved one shows signs of cognitive decline, and one of the most challenging is knowing when it might be time to consider professional dementia care.

Dementia expert Debbie Beech, a trained social worker and former regional manager of Alzheimer’s South Africa who now works at the Rand Aid Association, explains that the signs of dementia often appear long before they are widely recognised. “You often hear stories of elderly individuals living independently who suddenly become unwell or hospitalised and are then diagnosed with dementia,” Beech says. “In reality, they were likely compensating in their familiar environment for some time, using lists and routines to maintain daily functioning. Once removed from that environment, the signs become obvious.”

Recognising the right time

Home-based care has clear advantages: The person living with dementia (PLWD) remains in familiar surroundings, can maintain their daily routine and often receives one-on-one attention from a private carer.

However, Beech cautions that there are limitations. “Private carers are rarely professionally trained, and there are no regulations governing their qualifications,” she notes. “Care needs become increasingly complex as the disease progresses. Pain, immobility or other issues can go unnoticed, not because of neglect, but because these needs often exceed the knowledge of family or lay carers.”

Caregiver burnout is another key factor. Caring for a PLWD requires constant attention to daily living tasks – bathing, dressing, feeding, administering medication – along with household responsibilities. “When the caregiver’s physical, emotional and mental resources are stretched to the limit, both the PLWD and the family suffer,” Beech explains.

The benefits of a care facility

Structured facilities provide a consistent routine, which is vital for someone living with dementia. “Routine provides a sense of security. When a person’s world becomes smaller, their anxiety and agitation can decrease in a facility where their basic needs are consistently met,” says Beech. Nutrition and medication adherence also improve, as meals and medication schedules are monitored by trained staff.

Early placement in a facility can make the transition easier. PLWD can form relationships with carers while still capable of understanding, allowing them to adjust more comfortably as the disease progresses.

Overcoming guilt and emotional challenges

Families often struggle with guilt, fearing they are failing their loved one by moving them into care. “It is emotionally taxing, especially for spouses,” Beech notes. “Families need to remember that placing a loved one in a professional facility is similar to taking someone seriously ill to hospital. It is about ensuring they receive the best care.”

Placement also allows family members to reclaim their role as spouse or child, spending quality time with their loved one without the constant worry of day-to-day care.

Practical steps for a smooth transition

Familiar items from home – a favourite chair, blanket, or photographs – can make the room feel personal. Avoid telling the PLWD they ‘need care’, as this can cause resistance. Instead, provide simple explanations about moving to a safe, structured environment, and be prepared to repeat the explanation consistently.

Supporting caregivers

Caregivers need emotional and practical support, particularly when family members disagree with the decision. Beech emphasises the importance of a strong support system, whether through family, friends or the social workers and staff at the care centre. “Admitting that your loved one’s needs exceed your abilities takes courage. Allowing professionals to take over is a sign of love, not failure.”

See for yourself

Beech advises visiting centres to see the activities offered and the standards of care firsthand. Modern facilities provide social, recreational and therapeutic activities, encouraging meaningful engagement and interaction. Ask pertinent questions, such as whether there are visiting hours and if family members are allowed to visit during the first two weeks to help their loved one settle in. This early support is vitally important; without it, the loved one may feel abandoned.

Maintaining meaningful connections

Paradoxically, family connections often improve after placement. Without the constant burden of caregiving, visits can focus on enjoyment and companionship. Many facilities offer cafés or shared spaces for families to spend quality time together.

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Ally Cooper

Passionate storyteller with over 30 years’ experience as a journalist, editor, proofreader, content creator, social media manager and public relations and media liaison specialist.
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